Donor Registries

Donor registries serve as a bridge between the donor and the recipient. They maintain a database of potential donors and cord blood units, facilitating the search for compatible matches. When a transplant center identifies a patient in need, registries assist in locating suitable donors, coordinating the donation process, and ensuring the safe and ethical handling of the stem cells.

Recruitment: Registries actively recruit healthy individuals to join as potential stem cell donors.
Testing and Typing: They perform Human Leukocyte Antigen (HLA) typing to determine compatibility between donors and patients.
Education and Support: Providing donors with comprehensive information about the donation process and offering support throughout.
Collection and Transportation: Coordinating the collection of stem cells and ensuring their safe transport to the transplant center.
Follow-up: Monitoring the health and well-being of donors post-donation.

The World Marrow Donor Association (WMDA) plays a key role in global registry community. Through its Search & Match Service, WMDA manages an inventory of over 42 million donors available for transplantation. This service helps match patients with suitable donors for life-saving transplants.

WMDA ensures the safety of both patients and donors by:

Certifying registries that adhere to high standards.
Evaluating adverse events to ensure quick communication and effective management.
Conducting regular expert meetings to exchange best practices and improve the quality of care.
Sharing best practices.

World Marrow Donor Association (WMDA) and its members are committed to ensuring the safety of both recipients and donors. The WMDA certification program adheres to the highest international standards and ethical principles, including:

Protection of Personal Data: Ensuring the donor’s identity remains confidential.
Accurate Education: Providing donors with comprehensive information about the donation process.
Donor Rights: Enabling voluntary donation with the freedom for donors to change their minds.
Authorized Use: Safeguarding against blood stem cell trafficking and ensuring cells are only provided to authorized transplant centers.
Informed Consent: Mandating each donor to sign informed consent, with unemancipated minors and legally incompetent adults prohibited from serving as donors.

By joining a donor registry, you become part of a global network dedicated to improving access to stem cell donors and optimizing international collaboration in donor searches. Your participation can make a life-saving difference to patients in need.

WMDA Share: website where you can find operational information about cord blood banks, click here
European Directorate for the Quality of Medicines & Healthcare guide, which you find here.
Cord Blood Association provides myths and facts on their website.
Parents Guide to Cord Blood, click here

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Donor RegistryA Bridge Between Donors and Patients

What Is a Donor Registry?

The WMDA Network of Registries

Connecting Donors and Patients Worldwide

The Role of Donor Registries

WMDA's Role in the Registry Community

Ensuring Safety and Ethical Standards

Join the Global Network

Additional Resources