How to list donors and cord blood units – information for new & emerging registries
A registry is an organisation responsible for coordination of the search for hematopoietic stem cells from donors (including cord blood) unrelated to the potential recipient.
- The patient registry or requesting registry is the registry that acts on behalf of their transplant centres.
- The donor registry or providing registry is the registry that provides the hematopoietic stem cell product.
Setting up a registry or a cord blood bank can be challenging. Review the menu to the right for a proven step-wise plan that will get you started on this life-saving journey. You will be exchanging stem cell products with our global members in no time!
Step 1: Read the WMDA Handbook
Step 2: Share information about your registry
If you have all information collected, you can send the form to the WMDA office by mail (firstname.lastname@example.org). The WMDA office team will review the form and provide you information on the next steps.
Step 3: Global Registration Identifier Donors (GRID)
The purpose of the GRID is to:
- Reduce the risk of mis-identification of hematopoietic stem cell donors, due to the lack of global uniqueness of identifiers;
- Provide a standard eye-readable format for the donor identifier that can be used by humans;
- Provide a standard machine-readable format for the donor identifier that can be used by computer systems;
- Provide a check sum for transcription control;
- Provide consistent documentation;
- Improve traceability of donors.
All organisations involved in the process of recruiting, facilitating and providing haematopoietic stem cells from volunteer donors have implemented GRID. Established systems such as ISBT-128 or Single European code (SEC), which standardize the terminology, identification, coding and labelling of medical products of human origin, serve as the basis for GRID. WMDA has established a partnership with the International Council for Commonality in Blood Bank Automation (ICCBBA) to manage and maintain the GRID.
What is GRID?
- Publication explaining GRID: Global Registration Identifier for Donors (GRID) of Hematopoietic Stem Cells: Road to Automation and Safety
Technical details about GRID:
- Technical documentation: ION database and GRID rules
- Technical documentation: Technical Specification
- List of Issuing Organisation Numbers (ION)
- GRID Checksum Calculator
- How to work with GRID in excel
- Template: Global Registration Identifier for Donors (GRID) – implementation plan
Step 4: Connect with international registries
- Publish your operational and regulatory information.
- Write an article for Stem Cell Matters to introduce your registry
- Come to the WMDA meetings and ask for a timeslot for a presentation
Step 5: Provide a test file
Step 6: Apply for membership
- If you have sent the criteria to list donor form, signed the data use agreement, sent a test file to WMDA and uploaded the operational information, you can send a note to the WMDA office that your organisation is ready to start to list donors and/or cord blood units and would like to become a WMDA member.
- Let us know which type of membership you would prefer. For organisations that are listing their donors/cord blood for international search, there are two types of memberships:
- WMDA Provisional membership: for all organisations that list their donors and/or cord blood product in the WMDA Search & Match Service directly, or through another member. Also for organisations that are otherwise engaged in the field of HCT and that want to be part of WMDA’s international community. Please note that Board Approval is required to obtain this membership.
- WMDA Regular membership: this is an upgrade of the Provisional membership, allowing organisation to nominate volunteers for official positions within WMDA and to vote. It also includes the option to apply for Qualification and Accreditation.
- Contact WMDA office by mail (email@example.com) and let us know that you would like to register as provisional member
- The WMDA Board will review your application
- If your application is approved by the WMDA Board, your donors/cord blood units will become visible
- You will receive an annual invoice from WMDA. Find here the price list, click here.
Recommendation 1: View the recorded meeting about WMDA's services to support starting organisations
Recommendation 2: Consult the new & emerging registries
Should you wish consultation from this group, you can send a message by mail to: firstname.lastname@example.org. Please clearly state what kind of help or information you seek.
Recommendation 3: Sign up for online education programmes
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